Wednesday, December 17, 2014

What your Doctor May or May not Tell You



What Your Doctor May or May Not Know

I wonder how many people, like me, have had diabetes for many years but remained undiagnosed.  Big Pharma offers a vast variety of pills to treat any symptoms of diseases people may have.  Doctors may not even diagnose what is causing those symptoms.  They are good about passing the buck, too.  Patients are shuffled around from specialist to specialist and no one, including the patient ever sees the whole picture.  Most people simply do not have the time or the money to go from doctor to doctor to doctor without ever getting relief.  The stories I could and may yet tell . . .   I  became tired of wasting my time and hard earned money on doctors so I stopped going, but finally after many doctor-free years, my body gave out.  On my deathbed, I finally got a diagnosis.

The beginning of the end – a health crisis
I had been feeling bad for over a year.  I chalked it up to the change of life.  I read all I could about that topic and saw some women’s stories I could relate to.  I was desperate for answers and relief. I went to several doctors about serious symptoms I was experiencing.  They “practiced” their medicine on me, nothing worked and I felt worse than ever. 

My health crisis had begun with a huge water blister.  When this broke, calcifications were released and the water felt like it had “sand.”  Many years later, I would find a reference to “blood sand” in a Chinese medicine book printed in the 70s.

I tried to find out all I could about calcifications in the body. ** At the time, I found nothing helpful.  I was heading in the right direction and knew that calcium was involved but after trying to make sense of medicalese mumbo jumbo, I was more confused than ever.  I even wondered if I needed more calcium.

My body was crying out for magnesium but I did not know that then.  For a year and a half before my deathbed diagnosis, I was very sick. I lost 60 pounds in a few weeks.  I was often nauseous and unable to eat.  My body rejected breads and carbs – my body knew it could not handle more gluten!  I had several transient ischemic attacks (TIAs) or “mini-strokes.”  Part of my mind was objective and I remember thinking – this is interesting.  Whenever I was able, I was researching like crazy trying to figure out what was wrong with me.

I had several excruciating headaches – the most painful things I’d ever experienced and I know what pain is - but these were unlike anything I’d ever been through.  After the third headache episode subsided, I went to the emergency room.  I was still in pain but functional.   I was given the allergy medicine Tavist and referred to a doctor.  Turns out the allergy medicine is often used to make meth and I was supposed to take one in the morning and one at night.  I could not sleep!  In the trash they went along with some other allergy related drugs.

I made meticulous notes for the doctor I was referred to, hoping the information might help him figure out what was wrong.  I don’t think he ever read them.  He put me on Cipro **.  I broke out in a red rash from head to toe.  I discussed this with him but he did not seem too concerned and advised me to take the full course.  He told me I needed to get a colonoscopy but I refused.  I told him to fix the problem I was seeing him about first.  (more about colonoscopies and doctor’s incentives for another day.  They receive bonuses and sometimes luxury vacations based on how many tests they sell.)

After 4 or 5 visits to him in a matter of weeks, I stopped going.  I finally had a blood test right before my last visit.  The nurse called to tell me my blood calcium was 15.  I asked her what that meant and she would or could not tell me.  Again, I swore off doctors and muddled along for several more months.  I stumbled and fell a lot.  I was often so dizzy, I could not stand up – but I plugged along until one morning, I began to gasp for air.  After my experience with the last quack, a friend gave me the name of her doctor.  I put off going but did call the morning I was barely able to breathe. 

It was a miracle that she was there and would see me right away.  Somehow I managed to make it to her office.  I had lung Xrays and was barely able to manage that.  I was immediately checked in to ICU with congestive heart failure.  Several hours later, I went code blue, but was revived.  I was on a breathing machine for 2 days and they told my husband I may die or be a vegetable.  After a much needed rest, I woke up.  :-)

Finally, I learned what was wrong with me.  I was diagnosed with diabetes II;  I had kidney disease; I had heart disease.  Later, I would be diagnosed with sarcoidosis, a “mysterious” modern-day autoimmune disease where patients have calcium deposits throughout their body in soft tissue and organs.  I did find a reference to “granulomas disease” in my huge medical file.  Aha!   The calcifications that came out of my body did have a name.

I imagine that many such “triple diagnoses” are made in conventional medicine.  I had a doctor for each diagnosis and though my doctors were to receive and share my blood tests, medication, treatment lists and so forth, office clerks under the fear of HIPPA were not releasing my information where I – the patient - wanted it to go!

After my two week hospital stay, I went home with quite a drug list that included, carvediolol (coreg), prednisone, dixogyn, glipizide, low dose aspirin, 80 mg pravastatin and some others  I can’t remember now.  Coreg is a vasodilator and a beta blocker.  I tend to have low blood pressure that can often be around 85 over 50.  My cardiologist wanted me to take 12 mg of coreg and that was definitely too high.  He kept telling me that I would adjust and not have all the side effects like being dizzy, being unable to stand and even passing out!  Coreg will also increase blood sugar though this was never mentioned by any of my doctors.

In fact, the initial despair I felt over my initial diagnosis of diabetes, kidney and heart disease has turned into a blessing.   Wholly holistic health is the Key and I have never felt better in my life!  My doctors did what they had been taught to do – but they did not give me much emotional support or hope.  I suspect they all assumed I would be dead in a year or two – if I made it that long.  One doctor* told me I’d be dead in six months if I did not go on dialysis immediately after my hospital stay.  That was five years ago and I did not go on dialysis although my new doctor has told me again and again that eventually I will need it. That might very well be true if I had continued to rely solely on my doctors’ advice and prescriptions.

(*Note:  I found another nephrologist and never regretted it.  Several people died at that doctor’s jointly owned dialysis center from heart complications brought on by Fresinius dialysistreatment.)

Slowly but surely, I have put together bits and pieces to my health puzzle.  I have studied, researched and educated myself.  The doctors didn’t provide me with this information.  I was sent home with pills, a quick course in counting carbs and a list of foods I could and could not eat.  The list had three columns – diabetes, kidney and heart smart foods.  Many of the healthy foods “cancelled each other out.”  One food might be considered healthy for the diabetic and not for the heart patient, and so on.  WHAT!?!?!   Nutrition is much more complex than a sheet of generalities with no references or citations provided!  We all have to eat.

I was recently told that people diagnosed with diabetes II can now consult with a nutritionist that will be paid for by their insurance.  That is a positive step.  There are also endocrinologists that specialize in diabetes.  However, if your sixth sense tells you that something doesn’t feel right – do your own research.  Doctors are not infallible and have many patients.  You have one patient – you.

Autoimmune Disease?  There is a lot of that going around
Prednisone is prescribed for sarcoidosis and it did lower my blood calcium – which had been 15 when I entered the hospital.  If it reaches 17, you are dead.  I haven’t quite figured out how or why it works though I have some promising leads.  My doctors do not know or will not tell me.  I do know that Vitamin D levels are involved since my blood calcium goes up in the fall, when I get less sun shine. 

However, many doctors advise sarcoidosis patients to stay out of direct sun and to use sunscreen (which can actually increase the risks of skin cancer).  Many doctors advise sarc patients to avoid taking vitamin D3 supplements but we know that vitamin D and magnesium are both needed to balance calcium.  I believe excess fluoride deposits are part of sarcoidosis as well.  Magnesium is needed to break down and rid the body of both.  Calcium, magnesium and vitamin D must be properly balanced in a sarc patient.  People are suffering greatly from physician imposed treatments for sarcoidosis, which is simply a name given to a category of symptoms.

There are two vitamin D tests -- 1,25(OH)D and 25(OH)D. The correct test is 25(OH)D, also called 25-hydroxyvitamin D. I was given the incorrect test.  Furthermore, a standard blood serum magnesium test is virtually worthless.  Only a magnesium test at the cellular level can give you the information you need.  Sarc patients should be tested for both – along with their blood serum calcium.  However, without a good doctor knowledgeable in molecular biology – and common sense – neither will do you any good.

(High blood calcium can be related to some other serious conditions like cancer and parathyroid tumors.  After numerous tests, both were ruled out in my case.)  One of the best articles I read about this overall topic was canine-related. I will post the link so those of you interested can begin your own healing journey.
When I write about conventional/modern medicine v the traditional/herbal & supplement approach, the inspiration for my blog is a result of what I know from my own experiences.  There are thousands of medical horror stories on the net – from patients, nurses and med students.  There are thousands more that will never be told.  If my story can help just one person, my blog will be worth it.

For years women have been advised to take calcium and take calcium more calcium to prevent osteoporosis.  A poor quality of calcium, known as “dirt” calcium was added to all kinds of products.  Without magnesium and vitamin D to balance the calcium, people have become “calcified.”  Calcium deposits show up throughout the body in organs and soft tissues.  An imbalance of D, Calcium and magnesium coupled with extreme inflammation and clogged up arteries clearly describes what is often labeled as sarcoidosis.

Worth Repeating (from my previous blog entry)
Doctors are not likely to tell you that blocked coronary arteries are due to calcification caused by magnesium deficiency. Heart tissue scarring can be prevented by daily intake of oral magnesium and also giving IV magnesium at the first signs of a heart attack. High blood pressure is a sign of magnesium deficiency. Diabetes can be caused by magnesium deficiency. Stress burns off magnesium like nothing else can and certain medications block magnesium from working.

Many drugs cause magnesium depletion. **Cipro is one of the worst offenders because it also contains fluoride molecules which  bind magnesium making it unavailable in the body while it also kills off good microbes in the intestines. Stressful surgery can tax the body’s magnesium reserves and drugs that are given after surgery can cause more mag deficiency.  This is especially true for heart patients.

Diabetes II
We now know that diabetes II is on the rise among younger people but it was once thought of as something that older people must be concerned with.  This is because as a person ages, body functions tend to just wear out – or so we have been taught and many people never question that assumption.

This can be true if people do not practice daily preventative medicine – healthy diet, exercise, enough rest and a proper lifestyle.   As we age, we can no longer burn the candle at both ends.   However, due to our polluted environment and all the toxins (including those in processed foods) that our bodies must deal with on a daily basis, the onset of diabetes II can and is occurring at younger and younger ages.

Remember those restless leg syndrome commercials?  What was that all about?   I bet those pills were given to many people who actually had diabetes!  Pain in the feet and legs were probably treated with everything from NSAIDs to who knows what, when some simple blood tests could have revealed high blood glucose levels.  Have you ever experienced “electric shocks” in your muscles that feel like rubber bands snapping?  You can actually hear the “zaps” in your ears.  (PS – don’t tell your doctor this or he or she may send you home with a psych drug)  You are most likely magnesium deficient.  Diabetics are generally magnesium deficient.  It is said 80 percent of the population is - so read all you can about this invaluable mineral.

Two diabetic symptoms we all know about are increased thirst and urination.  But why is that a symptom?  The body is working overtime to rid the body of sugar and bring its metabolism back to normal.  The dehydration effect can cause severe leg pain and cramping.  The kidneys are taxed and working hard to rid the body of sugar and that is where the connection between kidney disease and diabetes begins.

Diabetes is a disease of the small capillaries – the extremities.  A good vasodilator will help get oxygen and blood to these places.  Gingko biloba is a natural vasodilator you might want to try.

Diabetes is also related to heart disease because excess sugar is converted into triglycerides.  These are the true culprit behind heart disease. They cause hardening of the arteries.  As the liver works to lower your triglyceride levels, it too becomes taxed.  It is already working overtime to rid your body of all the everyday toxins it must deal with.  As triglycerides break down, the LDL will increase, causing plaque buildup in the arteries.  A Mediterranean diet works wonders for lowering triglycerides and LDL.  Virgin coconut oil and olive oil are versatile and miracles  as far as I am concerned.  Vitamin E along with vitamin C, fish oil and garlic will also help lower triglycerides and LDL.

Seeing the light
Undiagnosed diabetics may also have various eye problems such as blurred vision, dark spots, flashing lights (sparklies) or seeing halos around lights.  Similar phenomenon can be found in other diseases, so once again, diabetes II may be misdiagnosed and treated with procedures and medications that give temporary relief. 

Undiagnosed diabetics may “go low” and experience dizziness and they may fall a lot.  They could also go into diabetic shock with lethal consequences from sugar falling to 40 and below.  More often than not, they will have blood sugars that are 300+ and not even realize what that is or what it means.  The sugar roller coaster will affect their moods and emotions and how they deal with life and the people around them.

The irony of diabetes is that when your blood sugar levels are high, the cells are deprived of that energy.  Your body tells you to eat.  You are hungry.  An experienced type II diabetic will know their sugar is high without having to take a reading.  From my own experience, when my sugar is low and I need to eat, I simply am not hungry and do not enjoy what I must eat to raise my sugar.  There are times, though, when I am hungry and my sugar is low and I can eat, so if in doubt, test.

Diabetics are told to keep their blood sugar between 70 and 110 – like a normal person’s.  Perhaps some diabetics can do this but imo, it is an almost impossible goal.   Once my sugar “settles” down to that level, it usually plummets fast and those sugar lows are not pleasant.   Common sense tells us one size does not fit all.   I believe that weight, size, activity and other conditions and medications should be taken into consideration.  A diabetic must know his or her body and take responsibility for how best to control their blood sugars.

Many diabetics experience “vision signals.”  How many times did I see “sparkly lights” dancing in my field of vision – especially during sunny days?  They were pretty and reminded me of  light glistening on the water like diamonds.  How many times did bright lights or even the television bother my eyes?  I now know this was my response to high blood sugar.  I also see that doughnut that many diabetics know so well.  We see this with our eyes closed.  It begins as a reddish/orange broken ring, then it becomes a ring of soft “red clouds” and not soon thereafter, the ring turns white and grows into a bright white circle.  This means low blood sugar.

One last comment.  Gluten sensitivity is linked to lymphoma – which can also cause hypercalcemia.  Gluten sensitivity is linked to many autoimmune diseases. “Glue”ten is the sticky stuff that causes the body to become sluggish.  It gunks up the endocrine system and your veins and arteries.  Healthy bowel flora is absolutely necessary to its digestion but gluten will cause great imbalances in that gut flora.  We all get far too much of it in our western diet. 



Managing diabetes
Holistic health is the key.  Eat right, learn about nutrition and exercise. (Did I say that already?) Relax whenever you can.  Enjoy life!

Stress raises blood sugar.  No wonder there are so many diabetics!  But seriously, stress does raise blood sugar in non-diabetics as well.  A person under constant stress is putting great wear and tear on their organs including the heart, adrenals and pancreas.  The body raises the blood sugar levels to prepare you for fight or flight.  If you are insulin resistant or a diabetic, that sugar remains in your bloodstream for much longer while the body works even harder to normalize your metabolism.  Anger and rage may be out of proportion to day to day situations.  Extreme emotional responses are not uncommon.  No, you are not going crazy.  Your body is tired and needs help.

Generally, most people instinctively reach for comfort foods to counter stress – carbohydrates and sugar.  These substances will change molecular metabolism and provide short term relief – a quick fix.  But then, the sugar high drops and the roller coaster starts up again.  After thousands and thousands of such sugar spikes in a lifetime, there is no wonder so many people are diagnosed with diabetes II.

Reach for low glycemic foods instead.  These foods will provide your body with energy and nourishment.  Nutrients are released into your bloodstream at a slower and more natural rate.  You will feel full longer and you will feel more balanced, calm.  High glycemic carbs like breads, cakes and pasta hit the blood stream quickly.  Blood sugar is spiked.  You may feel relaxed and sleepy.  Your body is redirecting all your energy into the digestion process.

Exercise will help lower blood sugar levels.  Get off that couch!  Stop watching TV! Tai Chi, yoga and meditation will help you learn how to relax without feeling a need to eat sugar and carbs.  Go for a walk; join the gym; take a dance class – do something new.

The neurotransmitter, serotonin (5-HTP) affects our mood.  Serotonin is found in beta cells of the pancreas that is required for insulin secretion.  High serotonin inside the cell wall stimulates insulin release while high serotonin outside the cell inhibits insulin release.  The ratio is important.  I read that steroid hormones inside the beta cells increase blood sugar.  There is further research being done on this topic, but I found that taking 5-HTP or St. Johns wort decreases my blood sugar naturally.  Once my blood sugar reaches a healthy point, it will not plummet the way it does with my diabetic medicine.  Other diabetics find that chromium picolate, cinnamon, gynostemma (kudzu), hemp seed oil and other naturals will lower bloods sugars safely and slowly.

(there is a handy link to a carb counter on this link)   


Counting carbs comes in handy when you eat out or buy processed foods.  The general rule is to eat 3 to 4 carbs per meal, three times a day.  15 – 17 grams of carbs equal one carb serving.  Carbs on food labels include the sugar that is listed but it is good to know the ratio of sugar to the remaining carbs.  Obviously, foods high in sugar foods should be avoided in favor of food that will be more nutritionally sound and take away your hunger rather than increase it.  Also pay attention to the serving size!

Read sugar free labels carefully.  They are not necessarily a low calorie or carb-free food.  Stay away from synthetic sweeteners.  Just because it says “diabetic” on the label does not mean it is good for you.  Aspartame, Splenda, sucralose and other synthetic sweeteners come with their own health problems.  They are so close to sugar in their molecular structure, they can raise blood sugar like the real deal.  Overuse of these products can also lead to diabetes even if a person avoids all other sugar in their diet!

It is known that aspartame can not only precipitate diabetes, but stimulates and aggravates diabetic retinopathy and neuropathy, destroys the optic nerve, causes diabetics to go into convulsions and even interacts negatively with insulin.  Good alternative sweeteners include stevia, monk fruit and coconut sugar.

Drugs
Diabetic drugs can stress your pancreas and burn out beta cells.  They block glucose from entering the blood stream, enhance the uptake of glucose into cells or they shut down the liver production of glucose.  Two kinds of oral diabetic drugs lower blood sugar by forcing beta cells to produce more insulin. These are the sulfonylurea drugs (Glipizide/glucatrol, glimepiride, glyburide…) and the newer “glinide” drugs (stalix, prandin…)

Sulfonylurea drugs stimulate insulin production for 8-12 hours regardless of blood sugar level.  In contrast, the naturals work with your body in a gentle manner, as needed.  The sulfonylureas bind to the ATP-dependent K+ (KATP) channel in the beta cell membrane, causing it to secrete insulin whether or not glucose is present in the blood stream.  The drugs are notorious for causing dangerous hypoglycemia – low blood sugar levels.

Doctors should advise people who take these drugs to keep their carb levels high but I never was.  I learned the hard way, by trial and error and common sense, to moderate the dosage and take it only as needed and there were many days I did not need it at all.  It is not healthy for you to eat whatever you want to and rely on these drugs to lower your blood sugar and that is what many people do.

Sulfonylurea drugs are associated with cardiac risk.  During my hospital stay, the cardiologist and nephrologist seemed to work at cross purposes and this is all too common.  Diabetes, kidney and heart disease  need to be treated holistically.   The drug they gave me glipizide which also stimulates a heart muscle receptor, meaning it can make the heart work harder.  If that was not frightening enough, sulfonylureas are also used as weed killers!

Testing your blood sugar
Here is another little bit of information no one bothered to tell me.  Home meters can read higher than your actual blood sugar.  This is important to know.  If you took your diabetic medication four hours ago and your reading is 70, you may actually be lower and you are in a danger zone of increasingly dropping blood sugar.  Sugars and carbs are needed to raise the sugar back to a normal level.   

Statins
One of the medical signs of diabetes is low magnesium.  Magnesium will help treat high cholesterol and high blood pressure.   The highest levels of magnesium are found in the heart.  Most pharmaceuticals drain magnesium.  Statin use can actually increase cardiovascular risk in women and in young people with diabetes.  It can bring on diabetes, coronary artery and aortic calcification due to magnesium depletion.

Statins also block a pathway in your body that creates CoQ10.  Energy production will lag and cell function will suffer.  In short, you will be fatigued all the time.  These are but two side effects.  My doctors never mentioned taking either magnesium or CoQ10 after prescribing my 80 mg of pravastatin.  I threw away the statins and now I take the supplements.

Higher doses of prednisone can affect the heart so if this pertains to you – do your research.
Read the possible side effects pages that come with prescriptions and take them seriously.  Pharmacists may give you more information than your doctors.

Know your pharmaceuticals
Let’s use Avandia as an example.  Avandia is used to aid in glucose control in Type II diabetic patients.

Adverse Effects: Back Pain, Headache Disorder
Less Frequent: Anemia, Dizziness, Hypercholesterolemia, Hyperglycemia, Influenza, Nausea, Peripheral Edema, Upper Respiratory Infection
Rare: Abdominal Pain with Cramps, Abnormal Hepatic (liver) Function Tests, Anaphylaxis, Angina, Angioedema, Body Fluid Retention, Edema, Fractures, Heart Failure, Hepatitis, Hypoglycemic Disorder, Macular Retinal Edema, Myocardial Infarction, Myocardial Ischemia, Pharyngitis, Pleural Effusions, Pruritus of Skin, Pulmonary Edema, Skin Rash, Urticaria, Vomiting, Weight Gain, Worsening of Chronic Heart Failure
Drug-Disease Contraindications
Most Significant 
Osteoporosis, Severe Chronic Heart Failure, Uncompensated Chronic Heart Failure, Significant Angina, Chronic Heart Failure, Coronary Artery Disease, Disease of Liver, Hypoglycemic Disorder, Myocardial Infarction, Myocardial Ischemia, Osteopenia, Pulmonary Edema, Type 1 Diabetes Mellitus Possibly Significant Diabetic Retinopathy, Edema, Fractures, Increased Cardiovascular Event Risk, Macular Retinal Edema

If you experience ANY of the side effects listed on your drug inserts, get busy and do your homework.  Tell your doctors but do not be surprised if they do not take them seriously.  It isn’t their life in jeopardy after all.  

The side effects listed as “less frequent” or “rare” are not either.  The majority of patients diagnosed with type II diabetes may have had the condition for many years.  Kidneys, liver and pancreas have been over worked trying to keep their body’s metabolism up and running by any means necessary.  Kidney impairment is directly linked with anemia (not enough iron to carry oxygen in the blood) and heart problems.  Dizziness can be caused when blood sugar levels drop too quickly and “go low.” 

Pharmaceuticals are not always the best answer. When they are mixed together in the same patient, they can affect all types of molecular and cellular functions – and don’t assume it is always for the best.

References and Further Reading




Fluoride FOIA information   Mercola.com










No comments: